Inside India’s Funding Failure in Rare Genetic Disease Care
On February 20, 3-year-old Arohi Kajabe died at home in Maharashtra’s Ahmednagar district after waiting for more than two years for medicines that never came.Her father, Yogesh Kajabe, a daily-wage farm laborer who plants cotton and soybeans, had sold his only piece of land and borrowed more than $6,000 to keep her alive.Arohi had Gaucher’s disease, a rare genetic disorder that silently destroys vital organs. Two injections every month could have saved her life—but each cost $1,200.“My only chil...
